Brain Malformation Study

Dr. William Dobyns

Seattle Children’s Research Institute
Center for Integrative Brain Research
1900 Ninth Avenue, M/S C9S-1
Seattle, WA 98101
Phone:  206-884-1025 (for GarMin Ghan)
Email:  william.dobyns@seattlechildrens.org

Congenital Myopathy Research Program

Dr. Alan Beggs

Children's Hospital Boston
Contact:  Elizabeth Taylor-DeChene
edechene@enders.tch.harvard.edu

Cornelia de Lange Research Study

Dr. Ian Krantz

Children's Hospital of Philadelphia
ian2@mail.med.upenn.edu

MCT8 Research Study

Dr. Samuel Refetoff

The University of Chicago
refetoff@uchicago.edu

NBIA Study

Dr. Susan Hayflick

Oregon Health and Science University
Email:  hayflick@ohsu.edu

Monogenic Diabetes at The University of Chicago

Neonatal Diabetes Registry

Dr. Siri Atma W. Greeley 

sgreeley@uchicago.edu
 

MODY Diabetes at The University of Chicago

MODY Diabetes Registry

Rochelle Naylor, MD

rnaylor@peds.bsd.uchicago.edu

Louis Philipson, MD, PhD

l-philipson@uchicago.edu

Primary Microcephaly Study

Dr. Geoff Woods

Cambridge Institute for Medical Research
cw347@cam.ac.uk